2 Comments

  1. Staci

    Thank you so much for taking the time to anwser my questions. You were of great help. I honestly believe staying on methaone is my best bet. I was on cymbalta 60mg since Nov 2004 and it definitely helped my phantom pain but I decided to get off of it this past April due to side effecs I thought were coming from that med. Every afternoon I get very clammy and sometimes can’t even move because of how hot, cold and wet I got. It’s extremely uncomfortable. It has gotten better but my phantom pain is now worse. Medications prescribed in the past Neurontin, Gabitril,Tegetol, Pamelor, Elavil, Trazadone, Clonidine, Ativan, Xanax, Duragesic Patch, Roxanol Loiquid,Ultram,Topamax, Baclofen, Oxycodone, Hydrocodone,Depakote, Mexilitine and more.These are meds only elated to my amputation and not the hundreds that came before all of that. I have an appointment in Ann Arbor MI with my Internist-Pain Specialist at the end of October and I definitely have nemerous questions for him. As I said before- I am the fortunate one as I don’t crave these drugs and never have in the past 25 years.I endured two catastrophic accidents within two years of one another starting at the age of 13. I had spent over 1400 days as an inpatient, had 23 broken bones, was in the U of MI burn unit due to a complete degloving injury to my leg.Had 68 opertions then finally it became inevitable that my leg be amputated. I couldn’t of imagined that phantom pain could be so excrutiating, life draining, knawing burning crushing pain. I’m a fighter, race snowmobiles, ride four wheelers, there is nothing I can’t due but I sure wish the phantom pain would stay under total control so I wouldn’t have to take medications because it’s the side effects of the meds that really are tough to deal with. I have read thousands of hours of material educating myself on every aspect of this stuff. I don’t like it when a doctor treats me or anyone else like another number or file. I don’t want to be put in a category or assumptions made that Oh’ for what yu’ve been through you must be this or that. I’m not a textbook. I have dreams, goals, desires, and feelings. I will not let this define me or be my Identity. I can be changed by what has happened to me, but I refuse to be reduced by it. Thank you for listening

  2. Staci

    I copied and pasted this article. It’s been my impression that bupenorphine isn’t superior for chronic pain. I also read an article that three amputees with phantom pain got adequete relief from using buprenorphine suppositories. Is there a difference between using the under the tongue med in comparison to these other methods?
    TRANSDERMAL BUPRENORPHINE EFFECTIVE FOR SEVERE CANCER PAIN
    Date updated: September 30, 2008
    Content provided by Reuters
    NEW YORK (Reuters Health) – Transdermal buprenorphine appears to be effective and safe in a study of patients with severe cancer-related pain, European investigators report in the Journal of Pain and Symptom Management.
    Dr. Philippe Poulain of Institut Gustave-Roussy in Villejuif, France, and colleagues compared transdermal buprenorphine 70 micrograms/hour with placebo in 289 opioid-tolerant patients with cancer pain requiring strong opioids in the dose range of 90-150 mg/day oral morphine equivalents.
    The patients were enrolled in a 2-week run-in phase, during which time they converted to transdermal buprenorphine or a placebo patch. Rescue analgesia with buprenorphine sublingual tablets 0.2 mg was allowed as needed.
    The researchers defined response as a mean pain intensity reduction of 5 points on a 10-point scale and a mean daily need for two or fewer buprenorphine sublingual tablets.
    One hundred patients dropped out of the study during the run-in phase due to a lack of efficacy or because of adverse events, while 189 patients continued on to maintenance treatment. Thirty-one more patients dropped out at that time, most of whom were on placebo.
    A response was seen in 74.5% of patients on transdermal buprenorphine and in 50% of patients on placebo.
    “This result was supported by a lower daily pain intensity, lower intake of buprenorphine sublingual tablets and fewer dropouts in the transdermal buprenorphine group,” Dr. Poulain and colleagues write in the August issue of the Journal. “The incidence of adverse events was slightly higher for transdermal buprenorphine.”
    Dr. Poulain’s group concludes that “transdermal buprenorphine 70 micrograms/hour is an efficacious and safe treatment for patients with severe cancer pain.”
    J Pain Symptom Manage 2008;36:117-125.

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